Wednesday, November 30, 2011

Sprinting

I'm in a race, I feel. A few days ago I began to feel a slight tightness in my chest. I breathed in deep a few times and it seemed as if my  lungs had the ability to fill with air. That was comforting. I tried to put the tightness out of my mind.

Yesterday, the tightness turned into a burning. Not a strong painful burn, but a dull ache. It reminded me of the feeling I got 24hrs after doing push ups. I haven't been doing push ups. I feel extremely tired, and turned out pretty useless yesterday. I also still have the rash on my nose, and the ear pain only peeps a few times a day. Just enough to remind me it's still there.

This morning, I awoke with a terrible pain and burning in the sternum area. And this time, when I took a deep breath, I got a sharp piercing pain under my right rib. I'm not gonna lie, I panicked a little. Mostly because I still want to believe, as frustrating as it is to do nothing, that I don't have the disease. My gut says differently, but I really want to believe I don't have it. So when the sharp pain continued with each deep breath this morning, I got sad, and then put it in gear and started moving around fast. I called both my primary care, and my rheumy.

The rheumy was oh so very disappointing. He's staff repeated the well versed song and dance about how he's not contracted with a hospital and therefore, has no hospital privileges. I don't care about that, that was NOT my question. My question was "at which hospital will I find someone with knowledge and/or experience with this problem?". They repeated the song and dance. I stopped listening to her after a few minutes and went to the x-ray place to have the picture of my lungs taken. I did make sure to tell the x-ray tech about my problem so that they can pass it along. She showed me what she typed: "Patient suspects WG from her own personal research". Nooooo... please don't type that! I clarified that both my primary care and rheumy suspect it. That I have elevated C-ANCA, and then quickly shared my list of symptoms. All that just so she could type a note to the radiologist... sigh... I'll know something in 48hrs.

That all took about 2 1/2hrs. I'm back home and feel better. Was it the movement, was it the Tramadol? I have no idea. I'm so sick of this! So so so sick of this.

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